Sleep Test result

Last week, we finally got to know the sleep test result and we more or less expected the outcome of the result. Danielle has to continue depending on the bipap. There good news out of this sleep test is our respiratory doctor was comfortable to allow Danielle to be off from the mask for 1 hour a day. But this 1 hours off from the mask must be carry out in the hospital and monitor. Anyway, we have already process taking the mask off from Danielle every day for aleast 30 mins. The setting of the Bipap still remain the same without any changes. Ipap 10, Epap 5 and the bpm 25.

Comments

  1. Glad to hear about the 1 hour sprints off bipap. Curious though, has she tried going up on her IPAP? Many SMA kids do really well w/ a higher IPAP and lower EPAP. Please give your sweet Danielle a hug for us! <3

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