My Princess Danielle

Through a friend who started the 'Rare Disorders Society (Singapore)' , we brought along danielle to support the first Rare Disease Day in Singapore. Held yesterday at the 'Raindrop@cafe' at the Scape.

Her hand coordination is getting better and it just matter of time she prefect the skill of clapping hand.

There are time where we rush to Danielle's room to the sound of alarm from the oximeter, later to find out that it a false alarm. From Danielle facial expression - we can tell that she seeking attention. Wondering if she figure out that the alarm from the oximeter really get everyone attention.

Eversince the mask was off from her face, she has lesses discomfort on her face. We begin to see more facial movement and her vocal has strengthen. There are time where we thought we heard a siren but actually it is Danielle complainting. We're still hoping Danielle will regain her smile back.