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Showing posts from February, 2019

Celebrating Danielle's 11th Birthday

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Few week ago, we held a mini birthday celebration with Danielle. We decorated her room with her fav character Peppa pig. Together with the Starpal team whom without failed for past 4yrs held a mini birthday with her. Though its a mini one, it mean alot to Danielle n Us. Every celebration, we celebrate it as though it could be her last one.

Sharing our Journey..

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My name is Frederick Seah, my wife Rebekah , and my elder daughter Beth  and Danielle. Danielle has been suffering from a medical condition called SMA - spinal muscular atrophy. Her muscles are  unable to develop as she grow older. This results in her severe immobility  which affected  her respiratory system and her digestive system. She is unable to move, breathe and to feed herself without the help of machine and from helpers. Presently there is no cure to her condition. It been a ten year long journey,and we know that these ten years had been a miracle for Danielle and for us.  Ten years ago, the doctor said that she can last only at most two years. But the goodness of the Lord allowed her these extra years. The condition affects her mobile  ability. This paralysis requires 24 hours of constant care. From wiping of her tears(yes, she crys because like you, she can feel, she can sense and she gets hurt),  to turning her body constantly to cha...