My Princess Danielle

To end this year, we went with Club Rainbow and Rare Disorders Society S'pore for a 4 days 3 night Cruise Trip on the Royal Caribbean. We had a long list of packing items for Danielle that came up to 10 small & big luggage that require 2 car to fetch us to the Cruise center.  But all was worth it as this round. Danielle was much at ease as compare to last trip. We were able to enjoyed more with her present.  We almost couldn't made it to the trip as 2 days prior to the trip, her feeding tube balloon burst which require a urgent replacement at the hospital.  Precious Moment to watch both Danielle and Kaelyn ( 2 yrs old) enjoying each other company. The climax of the trip were the gathering of Christian special need parent came together for a time of Thanksgiving. During this session, we can felt our heaven father being please and seeing each parent present were a great encouragement for all of us . 

Its been two year that we have moved into our new place. But it our first time bringing Danielle out for walk and for her to know the neighborhood.  Previously the furthest was going to the playground just under our block. We were on our way to have reunion dinner with my father in law at his place which located few block away from us. Through out the short journey, Danielle was busy observing the surrounding. Will have to plan for more of this short journey.

As it was school holiday, we brought Beth to the newly opening Legoland at Malaysia. If u ask me as compare to our Universal Studio in Resort World Sentosa. I will said Universal Studio. The whole day , we were basically under the sun without shade. It was a cloudy day, with slight rain in middle of day. Okay, we can't ask for much as it the time being together as family. But at the end of the trip we were rewarded with a beautiful scenic,  a silver lining at the end of the Rainbow. see below picture. Enjoys!

4 years ago during this period of time, Danielle was just 11month old and she recovering from her lung infection. For that I would never be imaging or dream that one day we will able to go tour together as a family. Last weekend, we brought Danielle and ourselves to a 4 days 3 night cruise together with other parents from Club Rainbow . There were about 500 of us. As there were Doctor and Nurse came along to this trip, should there be any medical needs they were there for us. Somehow Danielle through out the trip wasn't feeling comfortable. Most of the time her pulse exceed her usual but sat is normal. She spent most of the time sleeping and this really unusual. After a quick check on her by the doctor, he found nothing wrong with her. Guess she just not adjusting well to the new environment. This trip was a breakthrough for me and my wife that despite the risk and the logistics to bring along Danielle- WE MADE IT !