My Princess Danielle

Our story of the fund raising was featured in the Sunday Times on 1st Feb 2015. As this is our first fund raise, we actually intended to keep it small. So our sharing of the fund raising were kept within friends and church friend. But little to do we know that it end up to a sister in Christ from another church whom her sister is a SPH journalist, the same journalist Eve Yap interviewed us and featured  our story 2 yrs ago.  Through this fund raising experience, we are so amazed by how God lead us and got us connected with people. Surely it wasn't by chance but by the His divine arrangement that brought us this far.

Extract from the press report SundayLife on 17 March 2013 Danielle has one of the most severe forms of spinal muscular atrophy from a missing gene. KKH says it sees three or four cases of such cases a year. Danielle is on a ventilator round the clock. And because of reflux," meals can get into the airways and into the lungs, and her lungs may collapse", says Ms Choong. This happened when she was eight months old. "One day, she vomited and food came out through her mouth and nose, and her lungs collapsed," she recalls, adding that she has been tube-fed via her abdomen since. Muscle weakness means she cannot smile but her eyes light up when she watches Sesame Street and Disney Channel cartoons in the family's five-room flat in Simei. In five years, Ms Choong and her husband were asked thrice: " Do you want to resuscitate her?" Mr Seah, who quit his job last week to look after her full-time,says they could not have made it so far without the help...