My Princess Danielle

Over the few months, Danielle have grown quite a fare bit in length. As such the existing support structure have to be lengthen to suit her body length. In the photos, while watching the video, Danielle busying tasting her right hand, shaking her right leg and straighten her left knee.

Last sunday, the oximeter suddenly fail to display reading after we came back from family outing at the East Coast park. Initially we thought it just the probe that was giving the problem but after trying a few probe we realised that it not the probe but the machine itself. As there no 24 hour service support from the oximeter company, it pointless to look for help. We started to panic as Danielle had always been monitor for her oxygen sat level and pulse rate. The oximeter has alway been a comfort zone for us, we rely on the reading from the oximeter to monitor her condition -is she comfortable or not. Now we can only observe her facial expression and her complaint. During the day ,without the oximeter to monitor Danielle we still can observe her facial expression and complaint cry. But when it come to sleeping time, her sat level will not be monitored. I began to pray that God will see us through the night and protect Danielle while she was not being monitored. After the prayer, God...

We manage to find a Resmed mask that similar to Danielle existing mask. We did not immediate replace the present one as she been using it for 2 years. As she is so use to it that she protested when we put her on the new mask. But so far so good, Danielle is adjusting well to the new mask. During the transition, we actually put her on the old mask during the day and the new mask while sleeping. For the second photo, Beth my elder daughter was so sweet that she actually folded a paper hat for her sister.

We made a trip to the Botanic Garden over the holiday,but it was cut short when it started to rain.

Lately, Danielle started to vocalise quite a few bit in the day and also in the early hour 4am. Not knowing whether is she sleep talking or not. But we're looking forward that she able to communicate with us.