Danielle's story feature in the Sunday Life newspaper
Extract from the press report SundayLife on 17 March 2013 Danielle has one of the most severe forms of spinal muscular atrophy from a missing gene. KKH says it sees three or four cases of such cases a year. Danielle is on a ventilator round the clock. And because of reflux," meals can get into the airways and into the lungs, and her lungs may collapse", says Ms Choong. This happened when she was eight months old. "One day, she vomited and food came out through her mouth and nose, and her lungs collapsed," she recalls, adding that she has been tube-fed via her abdomen since. Muscle weakness means she cannot smile but her eyes light up when she watches Sesame Street and Disney Channel cartoons in the family's five-room flat in Simei. In five years, Ms Choong and her husband were asked thrice: " Do you want to resuscitate her?" Mr Seah, who quit his job last week to look after her full-time,says they could not have made it so far without the help...