My Princess Danielle

Today is day 38 that Danielle is not well. She caught 2 nasty bugs in Dec that keep all of us on our toes. She is much better now with loose secretion and she is on oxygen. Last week, her phlegm was yellowish and thick, tainted with blood that blocked up her trachy tube. If it not for the cough assist machine and Dr Choong / Nurse Serene from Starpals that came by to help us nurse her at home, Danielle most properly will be spending her Christmas and New Year in the ICU. It seem that every year end, many special needs children with weak immunity fall ill. For the past few years, it had been a routine for us to celebrate Christmas or New year in the Hospital with Danielle. It is a bonus to be able to spend time together at home. The thought of not needing to toggle time at work, home and hospital is a blessing. Praying that our precious princess wean off the...

It been 4th days and Danielle is much better. Enjoying her fav show. Our prayer that Danielle running nose will recovered and less frequent occur.

Haze,haze...please go away... Finally the PSI went down and over the last weekend (after many weeks of keeping Dan in her bedroom) we got the opportunity to bring Dan out to the living room. I can see that she is really happy that she is finally out of her room. Unlike her usual 'princess' fussy self.. She was quietly watching the youtube clips we chose for her. She enjoyed the family time in the living room. It was a wonderful feeling to be together as a family. The happiness was shortlived. Probably due to the haze, or maybe her regular allergy due to the bad air...Dan is down with upper respiratory infection..she can't sleep well and feel so uncomfortable. Unlike the normal children, this brave girl didn't cry, but just endure the discomfort. The look on her face gave her away. Helplessness was written all over her face. Twr is the 3rd day. I am feeling defeated again...it is never easy to watch her suffer and I can't do much.. Mom

Danielle has been battling with nasal and respiratory congestion for quite awhile. From a monthly episode reduced to weekly and to few days episode. This really cause great discomfort for her- high pulse rate, nose congested with mucal  and throat stuck with phlegm. There no fever so it not a viral infection. We felt so helpless to relief all her discomfort. Allergy is one thing we suspected. We start to change the room setting, remove anything in the room that might trigger the allergy. We also try out all the available medication for nasal congestion- Starting from Zyrtec , Clarityne , Fedac , chlormine , desloratadine and nasal spray. Hoping that will ease her discomfort and put a stop to it. As the medication will cause her drowsiness, she able to sleep through the night and not awaking to demand to watch her show. We even change her milk from cow to goat milk. Source said that cow milk is cause all the allergy and screation. We yet to see the result. Boosting her imm...