My Princess Danielle

We own a sedan car but after much consideration on how to transport Danielle together with all her medical equipment. We decided to trade in for a van like MPV car and fitted a telescopic ramp that can be retractable to fit into the car. That was 1 years ago and ever since bringing her around was so much ease. Initially , we push her up at the side of the car and not through the back. Later we realized it not so comfortable for Danielle to travel facing the side.

Finally Beth's my elder daughter recovered from her sickness and it was back to her normal self. As for Danielle, she no longer need to be isolated away from her sister afraid for catching the infection.

A tough week for us as Beth my daughter was sick having fever that came on and off during the night. Which mean no sleep for daddy and mommy for 3 night plus next day need to work. It was this precious moment, that i capture her laughter. Due to her low tone muscle, there not much of facial expression and she lost her smile long time ago. So this laughter is so precious as for her to laugh, she need to make a lot of effort.

Finally the anticipate sleep test for Danielle was done. We actually plan to carry out the test last June, but due to some reason it had to be postpone till now. But we're glad it was postponed as this time Danielle was well prepare to went through the sleep test. During the sleep test, Danielle was off from the mask from 8pm to 4 am. She actually sleep without the ventilator support. But couldn't went into deep sleep, after the test Danielle was completely tried out as she spend the next day sleeping till late afternoon. The sleep test result will only to be out next month. Till then we continue everyday removing the mask from Danielle for 20mins or more.

We made a point once a week to bring Danielle out to sun her. Actually it just to bring her out of the house away from the four walls where she spend most of the time.