My Princess Danielle

Over the last Sat 18 July2015 afternoon, our family were treated to a event over at the Royal Palm, the Flyer. We were treated to food buffet, balloon sculpture, magic show, massagers for all the Uncles and Aunties. Manicure session for all the mummies, aunties & also myself. Thank You, Auntie Eunice & her team , MDSS and RDSS for organising this event. with Auntie Joscelin pink finger nail  with Auntie Eunice, sorry I'm just too tried, zzzz

On the 13th March 2015, Thanks to Club Rainbow that both my wife, Rebekah and my helper brought Danielle to the River Safari.  Danielle had a fun time watching different type of fishes living in the Amazon River, Nile River. Expose herself to the open. A different experience she had with the last year December visit to the Sea Aquarium.    

    Danielle touching the Starfish Early birthday celebration with Danielle and her elder Sister Beth Starting of the new year sat night, Thanks to RDSS for organised a trip to the Sea Aquarium where  just for the whole group of RDSS family and even spent the night there infront of the gallery ( facing the aquarium). Danielle didn't spent the night there as she was still recovering from her flu. There no usual crowd there so we can take our time viewing the marine life. This was Danielle second time there and she enjoyed watching the fishes. We also got a chance to has a early birthday celebration for both Danielle and her elder sister Beth right infront of the gallery. What a memorable time for both of them and a good start of the new year.

To end this year, we went with Club Rainbow and Rare Disorders Society S'pore for a 4 days 3 night Cruise Trip on the Royal Caribbean. We had a long list of packing items for Danielle that came up to 10 small & big luggage that require 2 car to fetch us to the Cruise center.  But all was worth it as this round. Danielle was much at ease as compare to last trip. We were able to enjoyed more with her present.  We almost couldn't made it to the trip as 2 days prior to the trip, her feeding tube balloon burst which require a urgent replacement at the hospital.  Precious Moment to watch both Danielle and Kaelyn ( 2 yrs old) enjoying each other company. The climax of the trip were the gathering of Christian special need parent came together for a time of Thanksgiving. During this session, we can felt our heaven father being please and seeing each parent present were a great encouragement for all of us . 

Over the weekend, we attend the second time the event - Project Smile which organised by a mommy Rae. This event had been organised for the 5th year. A tea party event for the Children, parent and caregiver to spend an afternoon that aim to GIVE A SMILE for the family. Beside a Yummy lunch, there exquisite face and body painting services. Attach the Danielle's face painting pic. We manage have the same mommy whom did the face painting for Danielle last year event.

Last week over the holiday we meet up with Amelia's family over their place for a dinner. Amelia is 6 year old, At the moment there no diagnosis why she couldn't sit up or not having any facial expression. Doctor see it as Neuro degeneration. Through this meet up, both family were able to share  information and encourage each other in our journey with our special need child. Amelia also has a elder sister and together with my elder daughter Beth, they were able to play together.  Such pleasant scene to see them playing together.

This afternoon we attended the 'Project Smile' organised by Rae and the hospital and this was the 4th year running. This tea party was specially cater for the hospital homecare patient and their caregiver. Both of my two daughters dress to the occasion of being the princess belle. It was a time fun with ballon sculpture, face painting, performance and family photo shoot. But most of all getting to meet up with other parent with special need child.

Through a friend who started the 'Rare Disorders Society (Singapore)' , we brought along danielle to support the first Rare Disease Day in Singapore. Held yesterday at the 'Raindrop@cafe' at the Scape.

As a birthday present for both our girls, we brought them to the 'Singapore Flyer' on the first day of the Chinese New year. As it was a public holiday, the queue to the Flyer were long. So we check with the Flyer staff whether there any handicap access to the Flyer. After that, we were given a VIP treatment of skipping the queue of taking a straight lift to the Flyer. What I learn from this experience- No harm asking, you never know what you be getting out of it. Also all this year when we bring Danielle out with us. Where ever we go, there alway alot of attention given to us from bystander. We getting used to being the 'Super star' or simple term ' being thick skin'.

During the long festive season holiday, we finally found the time to try out a pre-loved buggy that a fren gave us. It is a rolls-royces version in the buggy world. We are very fortunate to get it. Perfect for Dan. Now what the buggy lack of is a canopy to shade her from the sunlight. Anyway, last sat we gave a trial run at the downstairs of our flat. We brought Danielle to the playground.. This was actually Danielle first time going to a playground. As she watches at a distance how her sister slide down the slide and doing the stuff that what a normal kid love to do.

We had a mini Christmas celebration over my wife's sister place. Danielle dress to the occasion and the colorful dress was a gift from a friend.

We made a trip to the Botanic Garden over the holiday,but it was cut short when it started to rain.

On the children day, a mummy gave both our kids each a hair pin. It's feature in the Danielle photo. For Beth, she was all dress up to watch a ballet performance title 'The sleeping beauty' at the Esplanade.

Last sunday, we went to the Marina Barrage. With the opening of the Marina Bay Sand , the night scenic was spectacularly beautiful.

Last friday, we've outing to the singapore science centre and the omni theatre . It great eye opening for Danielle, so we got her a big sun glasses.

It is a beautiful day and it will be good to bring Danielle out to enjoy the sun and sea breeze.

Having a fun time over at Marina Barrage - flying Kite & chasing birds. But most of all, Danielle got a chance to view the world outside.

Last weekend, we have a short stay over at Ananda Country Club. Its Danielle first stay out other than the hospital. There alot of logistics matter to resolve and things to bring but we made it. Thanks to my incredible and super wife whom arrange it.

With much anticipation, we set ourselves with Danielle for a short trip at east coast park. It has been awhile Danielle go out for a sun tanning session. For the past few months, the only time she be out of home is to the hospital . We went to the far end of the east cost park where there is no crowd. We settle ourselves under a tree not far from the seaside. Beth plays sand castle with mummy, and Danielle watches us from a distance under the shade. We finished the east coast park trip with lunch at Carl's Jr restaurant . For the first time, we noticed strange look on curious diners. They must be wondering why on earth this baby is wear a breathing device on her nose and a meter device hanging on the stroller . Guess this is something that we need to ignore.