My Princess Danielle

In the last few weeks, Danielle had been waking up in the middle of the night and just couldn't get her back to sleep till morning. We are clueless of what to do and when we brought it up to Danielle's Physiotherapist. She narrow down to her hip which made more sense. We knew all along that due to her degenerative disorder which effected her muscle. Her hip had little muscle to support her leg and this will cause pain and sour when she lay at her side. All we can do now is to relieve her discomfort. We try out a special mattress that had the purpose of pressure relief and place more bolster at her hip area. We also try hanging her leg which relief the leg pressure on the hip. We will monitor and hope this method with ease her discomfort and in return we can have more sleep.

In the recent admission to the hospital that I notice Danielle sleep without closing her eye. It really sadden me to see how her weaken muscle has effect her eye lid. It had taken away her smile 1 years old. Everytime she admit to hospital, there will be some part of her muscle weaken further or lost. Tomorrow afternoon, Danielle is schedule to do her tracheotomy surgery. We hope through this, she will get better vision and much better management with her secretion issue.