My Princess Danielle

Watch her drumming away , really make our day. druming session

Her hand coordination is getting better and it just matter of time she prefect the skill of clapping hand.

It been coming to a month after Danielle discharge from the hospital. Within 3 week, she actually put on addition of 1kg weight. Which made us quite concern as her weight gain just too fast. Beside this I constructed a new Gym for Danielle to work on her exerising.

On Tuesday afternoon, Danielle was well to be move from ICU to the High Dependance ward. At the meantime, she have alot of secration in her nose and mouth. This mean frequent suctioning to be carry out. During this time, we had to learn again the CPR and trach management training. We are targetting next week Danielle to be discharge but still up to her whether is she well enough. As she already spent 3 week inside the ICU ward, she hardly got the chance to move her limb. So we brought the Gym to her and she enjoyed moving her leg.

After a good rest, Danielle is back to her own self exercising. I was worry that Danielle limb movement back track due to her hospital stay. Here the clip after coming back home last evening. Yesterday morning, there another vomiting episode that almost lengthen her stay again. Thanks God ,the vomiting episode did not lead to any serious issue but it did tired out Danielle and she spent the rest of the morning sleeping. Thanks for covering her in Prayer.

With the guidance from Danielle's physio therapist, by adding additional support along her arm. This give her arm more room for movement.

It give me great joy to see Danielle happily shaking her feet, as the video show it clapping her feet.

Danielle's knee contractual is getting serious (unable to straighten her knee), even though she put on the knee brace daily. Taught by her physiotherapist, she is elevated at an angle as shown in the picture. It relieve the strain at her hip allowing her to able to tolerate longer on the knee brace. Danielle put on 3 time a day of 1 hour each. It a session that not very comfortable, just imagine try to straighten a knee or foot that is already bent.

Over the few months, Danielle have grown quite a fare bit in length. As such the existing support structure have to be lengthen to suit her body length. In the photos, while watching the video, Danielle busying tasting her right hand, shaking her right leg and straighten her left knee.

I learn to construct this support structure from the families of the SMA space network. With this, we able to support Danielle's leg and give her the freedom to move it.