Sharing our Journey..

My name is Frederick Seah, my wife Rebekah , and my elder daughter Beth  and Danielle.
Danielle has been suffering from a medical condition called SMA - spinal muscular atrophy. Her muscles are  unable to develop as she grow older. This results in her severe immobility  which affected  her respiratory system and her digestive system. She is unable to move, breathe and to feed herself without the help of machine and from helpers. Presently there is no cure to her condition.

It been a ten year long journey,and we know that these ten years had been a miracle for Danielle and for us.  Ten years ago, the doctor said that she can last only at most two years. But the goodness of the Lord allowed her these extra years.

The condition affects her mobile  ability. This paralysis requires 24 hours of constant care. From wiping of her tears(yes, she crys because like you, she can feel, she can sense and she gets hurt),  to turning her body constantly to change sides, Danielle requires constant care. Danielle needs, every 4-5 hourly, to remove her secretions  from her throat as she unable to spit out. This is done so that Danielle would not get choked. Indeed Danielle’s  fragile life is every moment in God’s hands.

It is laborious and tedious to take care of Danielle, yet she is a gift to God for us. We do not fully understand why all these happen, but we know that there is a purpose. Someday, in heaven, when I am with God, I will fully understand the meaning of all these.

We have to do physiotherapy with her limbs daily to prevent contraction of muscles and body tissues. As she is unable to feed orally, we use a pump to slowly pump liquid food through  a feeding tube directly into her stomach.
We also engage a special teacher to be by her bedside, to engage her with mental activities to stimulate her.

Despite these challenges in caring for Danielle, we can only approach one moment at a time, one step at a time and one day at a time. We have to rely totally on God’s strength and His wisdom. I thank God for His faithfulness, for his grace in not failing to provide resources and comfort along every step of the way.

Though Danielle has not been healed physically, she has already been healed spiritually, as we saw with our eyes how GOD rescued  her from death a few times. Praise the Lord, the Lord raises the dead and make every person spiritually whole! Amen!

We continue to trust His plan for Danielle to fullfill God’s Holy plan. Someday in heaven, Danielle will have a glorious, fully functioning body which reflects the glory of God because Danielle is a blessed child of our Great and Loving God.