Hey, No Mask On!



Everyday during bathing time, Danielle's mask will be off from her face for 15mins to clean and dressing her up. It was this moment that I noticed that she actually enjoying this moment of not having something on her face and having a clear vision.

Comments

  1. AnonymousAugust 23, 2010 at 9:30 PM

    Excellent! Keep up the great work!

    BW
    Auntie L

    ReplyDelete
  2. Yin MayAugust 23, 2010 at 11:29 PM

    She is so beautiful. Nice to see her like this!

    ReplyDelete
  3. CCHSKIDSeptember 5, 2010 at 2:03 PM

    Danielle is a beautiful little girl! I am a young adult with CCHS, for which I am trached and on a vent 24/7. I also run the Blogs for the Kids with Vents support group my mom owns. We have a number of SMA families in our group, and you are most welcome to join! Check out our Blogs and use the contact form to let me know if you want to join.

    God Bless,
    Deborah
    http://kids-with-vents.blogspot.com/
    http://kids-with-vents-prayer-circle.blogspot.com/

    ReplyDelete

Post a Comment

If you like to comment but find it hard to get your comment up. Just click under 'Anonymous' and end with your name. Look forward to your comment.

Popular posts from this blog

Danielle's 12 yrs old birthday

Image
Few month ago, We celebrated Danielle's 12th birthday in a happy occasion. Team from Starpal and Danielle's fav  Medi-minder Auntie Kay paid us a visit. Its the team from Starpal that makeup of doctor, nurses, social worker and medi-minder have been supporting us all this while. Although we unable to see much facial expression from Danielle due to her condition. Through her eye we able to tell that she was delighted for this occasion. She was given a watch and pepper pig as present.
Read more

Celebrating Danielle's 11th Birthday

Image
Few week ago, we held a mini birthday celebration with Danielle. We decorated her room with her fav character Peppa pig. Together with the Starpal team whom without failed for past 4yrs held a mini birthday with her. Though its a mini one, it mean alot to Danielle n Us. Every celebration, we celebrate it as though it could be her last one.
Read more

Hospitalisation

Image
Last tuesday afternoon, Danielle suffer from a bad reflux where the milk that she takes in flow backward resulting in acute lungs collapse. It happened when both me and my wife was not around. This episode was so bad that we have to call in the emergency service to bring her to hospital as she require to be resuscitated. Upon reaching the hospital A&E service, she has to be intubated to keep her condition stablise. During the intubating process, danielle lost two teeth ( one came off and the other one is loose). What a painful process but it keep her condition stablise. On thursday afternoon, the doctor decide to extubate her and put her back to bipap.After the extubate she didn't seem to do well as she had few desat episode. The doctor said they might put her back the intubate. This morning, she responded well but her pulse rate still is high. Through out this, the church and our cell group are praying for Danielle. I can see how God supernatural healing upon Daniel...
Read more