My Princess Danielle

Last week, Danielle had a episode of vomiting. When we received the call from my helper in the late morning about this our heart sank. We had to quickly rush back home from work. As we are staying together with my parent, they were around to help to make the phone to us while my helper attain to Danielle. Thank God, my helper able to be calm in this situation and perform suctioning first. It clear the mouth blockage and allow Danielle sat level to gain back to above 95%. Arriving first at home is my wife to access the situation. As it turn out to be only a mild vomiting that did not lead to any blockage to the airway. But we realised that her stomach was bloated, indigestion. So the next few hours danielle was on water only. By evening time she was back to normal but her heart rate still a bit high than normal (125) 140. When she asleep, her heart rate maintained at 110 instead of 90-98. The previous episode happen early this year during the Chinese new year season where Danielle had a...

Last week, we finally got to know the sleep test result and we more or less expected the outcome of the result. Danielle has to continue depending on the bipap. There good news out of this sleep test is our respiratory doctor was comfortable to allow Danielle to be off from the mask for 1 hour a day. But this 1 hours off from the mask must be carry out in the hospital and monitor. Anyway, we have already process taking the mask off from Danielle every day for aleast 30 mins. The setting of the Bipap still remain the same without any changes. Ipap 10, Epap 5 and the bpm 25.

On the children day, a mummy gave both our kids each a hair pin. It's feature in the Danielle photo. For Beth, she was all dress up to watch a ballet performance title 'The sleeping beauty' at the Esplanade.

We own a sedan car but after much consideration on how to transport Danielle together with all her medical equipment. We decided to trade in for a van like MPV car and fitted a telescopic ramp that can be retractable to fit into the car. That was 1 years ago and ever since bringing her around was so much ease. Initially , we push her up at the side of the car and not through the back. Later we realized it not so comfortable for Danielle to travel facing the side.

Finally Beth's my elder daughter recovered from her sickness and it was back to her normal self. As for Danielle, she no longer need to be isolated away from her sister afraid for catching the infection.

A tough week for us as Beth my daughter was sick having fever that came on and off during the night. Which mean no sleep for daddy and mommy for 3 night plus next day need to work. It was this precious moment, that i capture her laughter. Due to her low tone muscle, there not much of facial expression and she lost her smile long time ago. So this laughter is so precious as for her to laugh, she need to make a lot of effort.

Finally the anticipate sleep test for Danielle was done. We actually plan to carry out the test last June, but due to some reason it had to be postpone till now. But we're glad it was postponed as this time Danielle was well prepare to went through the sleep test. During the sleep test, Danielle was off from the mask from 8pm to 4 am. She actually sleep without the ventilator support. But couldn't went into deep sleep, after the test Danielle was completely tried out as she spend the next day sleeping till late afternoon. The sleep test result will only to be out next month. Till then we continue everyday removing the mask from Danielle for 20mins or more.