My Princess Danielle

Jul08 - Aug08 Danielle did not reach her milestones. She still cannot roll over at 6 months and her motor skills are relatively weaker than Beth's (my 1st daughter). My maternal instincts told me something is wrong. One day while praying for Dan, the word "muscle" flashed across my mine... the same way when I prayed for her name... "Danielle" flashed across my mine. I called my church friend, E S (whom I know is a PD that time) and spoke to her about my concerns. God is so good, He knew that I will be going through a tough time with Dan, so He arranged for me to know this church friend. I didn't even know she is a geneticist until the day Dan is diagnosed with SMA . The very next day on 29 Jul 08, I brought Dan to the polyclinic, and straight away the MD diagnosed Dan with SMA . To him, the symptoms were very clear, trembling tongue with weak arms and legs. He ordered a fast track appointment to see a neurologist. My tears could not stop flowing for the r...

Danielle was born on the 22 nd of January 2008. Weighing at 2.4kg, with only less than 2 hours of labour and a little drama episode happened along the way. The drama started from seeing the gynae, back home packing and finally on the way to hospital. Dan is our second child and we thought were much prepared for it. She was born healthy just like a normal child... little do we know the journey ahead of her is so tough and painful... something we never ever expect to happen. Dan has SMA, a disorder that never happened in our family line. It is a total shock to us. She is diagnosed with SMA when she was 6 months old.