My Princess Danielle

After a good rest, Danielle is back to her own self exercising. I was worry that Danielle limb movement back track due to her hospital stay. Here the clip after coming back home last evening. Yesterday morning, there another vomiting episode that almost lengthen her stay again. Thanks God ,the vomiting episode did not lead to any serious issue but it did tired out Danielle and she spent the rest of the morning sleeping. Thanks for covering her in Prayer.

Just as we are expecting good new of Danielle to discharge from hospital. Danielle couldn't tolerated the early morning feeding schedule and the doctor decide to postphone her discharge another one more day. As much we highlighted our concern of her cross infection in the ward and we able to manage her well. The Doctor still want to keep another day and aleast seeing her able to tolerate her usual feed schedule to 80-90% level. Today feed schedule for Danielle was just 50% of her usual feeding schedule and the rate the doctor approach to bring up Danielle is very slow. One things i learn for this episode is that our kid when sick their tummy will just go haywire and take awhile for it to resume back it usual self. So far today feeding for Danielle turn out well as she can tolerate better and tomorrow we'll be stepping up her feeds. If everythings going well, we will be looking at her discharge on friday afternoon. Do pray for Danielle that she will not catches any infections an...

Last Sunday morning, Danielle had a desat that due to her vomiting. We managed to get her sat back to normal level and decide to make a trip to the hospital just to made sure Danielle did not had any lung collapse. While she being treated in the A&E, Danielle had another desat. Doctor decide to admitted her for futher monitoring Now we're in day3 and she doing okay .Doctor will let us know the next day if she okay to discharge from the hospital.

Two weeks ago,sat we had a session with Danielle's physio therapist. We look forward for this session as if it is like going for a progress assessment for Danielle. Not forgetting there homework to be carry out on Danielle after the session- For this session, we were told that Danielle had grow 'taller'. Also 3 month ago we made for Danielle a Foot brace (AFO), it now outgrown and we have to go back to hospital to remake another for danielle. Another comment was that Danielle had grown stronger in her hand and leg movement. Great job keep it up Daddy, Mommy and Vicky! Below a clip of Danielle swinging her left arm-

With the guidance from Danielle's physio therapist, by adding additional support along her arm. This give her arm more room for movement.

View from the balcony It been awhile that I update. This was because we had a house moving project, we finally began to settle down in our new place. For Danielle new room, we got her a hospital bed that allow us to incline or decline her with ease.

It give me great joy to see Danielle happily shaking her feet, as the video show it clapping her feet.