My Princess Danielle

With the guidance from Danielle's physio therapist, by adding additional support along her arm. This give her arm more room for movement.

View from the balcony It been awhile that I update. This was because we had a house moving project, we finally began to settle down in our new place. For Danielle new room, we got her a hospital bed that allow us to incline or decline her with ease.

It give me great joy to see Danielle happily shaking her feet, as the video show it clapping her feet.

During the long festive season holiday, we finally found the time to try out a pre-loved buggy that a fren gave us. It is a rolls-royces version in the buggy world. We are very fortunate to get it. Perfect for Dan. Now what the buggy lack of is a canopy to shade her from the sunlight. Anyway, last sat we gave a trial run at the downstairs of our flat. We brought Danielle to the playground.. This was actually Danielle first time going to a playground. As she watches at a distance how her sister slide down the slide and doing the stuff that what a normal kid love to do.

Anything to Danielle is interesting and exploring- even a CD that kept her amuse for awhile.

Almost everyday without fail, I'll do mouth therapy for Danielle. Just to share some her funny facial expression. Due to less usage of her mouth for oral feeding, the muscle around her face get tense up. Before hand it take us quite awhile to loosen up the muscle around her face.

Just a day before Danielle birthday, she had another vomiting episode. By the time, we reached home Danielle had settled down but still her pulse rate still above the normal. The rest of the day, we just feed her with water to avoid another episode. By the next day, her pulse rate was back to normal and we proceed to the plan to bring her to the birthday party. During the party, Danielle's pulse rate kept staying at the abnormal range. So kept her in the Chalet bedroom away from the guest. The birthday party went well but when it about time to go home. Danielle's sat suddenly went down to 89% which was not alright. Immediately, we try to suck the secretion that stuck in her throat and at the same time admit her oxygen. This bring back her sat to above 95% which was the normal level. Her heart still maintain at 140-160 which was not normal. We rush her to the hospital to had a x-ray done to see if she had a lung collapse . The X-ray later turn out to be fine and even though the ...