My Princess Danielle

Over the past few days, Beth , Danielle's sister has been faithfully helping her watering the plant. When I present her the plant, Danielle was not in the mood to view the plant which had grown so much. Danielle's condition for her running nose for the past few day is also quite stable.There no recurr of the episode and we're keeping our finger cross  that finally able to put her running nose episode to halt. In attempt to put this episode to a halt, we did quite a fair bit of things from changing her Cow milk powder to Goat, adjust her cough assist and bipap machine pressure setting and change her flu medication.  

  Growing green bean- homework for Danielle given by her teacher. We also added new word "Water Plant" to her comm book. Every day we will encourage her to water the plants and watch them grow.   Another masterpiece finger paint by Danielle and the colours of the flower was choose by herself . Also at the sametime showing  her the numbering 1 to 5.

Danielle has been battling with nasal and respiratory congestion for quite awhile. From a monthly episode reduced to weekly and to few days episode. This really cause great discomfort for her- high pulse rate, nose congested with mucal  and throat stuck with phlegm. There no fever so it not a viral infection. We felt so helpless to relief all her discomfort. Allergy is one thing we suspected. We start to change the room setting, remove anything in the room that might trigger the allergy. We also try out all the available medication for nasal congestion- Starting from Zyrtec , Clarityne , Fedac , chlormine , desloratadine and nasal spray. Hoping that will ease her discomfort and put a stop to it. As the medication will cause her drowsiness, she able to sleep through the night and not awaking to demand to watch her show. We even change her milk from cow to goat milk. Source said that cow milk is cause all the allergy and screation. We yet to see the result. Boosting her imm...

holding a slice of bread holding a strawberry The last time that we place food into Danielle mouth was 5 years ago. While she was 5 to 7 months old, she had a taste of baby food. But every since then, food has never been in her mouth but mostly the suction catheter to suck out her secretion and phlegm. There a period of time, it create a fear in her that anythings went into her mouth mean will hurt her. She will bite the suction catheter everytime we try insert it into her mouth. Nowadays it doesn't happen anymore as she lose much of her jaw strength. But we do notice that she able to rise her chin that really require much strength to do it.

Over the past few weeks, Danielle responded well to the lesson conduct by her special needs teacher. This week, she did finger printing art and she get to choose which color she want to color the windmill and also some balloons. Throughout the session she was engaged, no complaints and made little approving sounds when the teacher showed her the picture as they went along. Hearing the feedback from Danielle's teacher was very uplifting. The only issue we face for Danielle is the timing to conduct the lesson. Though we may fix the appointment with the teacher, Danielle may just at the last moment change her mood or waking up early in the morning and by the time teacher came she just too tired to attend the lesson.

After posting up the video clip, a friend of us commented that Danielle did show her interest. But we just didn't aware of her responds. When we go back to view the video clip again- to our surprise Danielle attempted to pronouncing the word 'E-le-phant' twice and indicated her desire by looking the 'Yes' card a few time. Until she got fed up and switch off as we just didn't got her message. This days we started to introducing the schedule card system to keep Danielle advance notice of the day activties which ready keep her aware of what coming up. All children don't like surprise - same goes to Danielle too. Aleast now her bedtime doesn't stretch as before. All this was taught by her special education teacher.

As my previous post on the YES & NO card to communicate with Danielle. Here the video clip of her while we figuring out what she want to watch. In the end, she loses interest by looking elsewhere.We going back to basic to establish a communication with her before we advance it using the mytobii device.