My Princess Danielle

holding a slice of bread holding a strawberry The last time that we place food into Danielle mouth was 5 years ago. While she was 5 to 7 months old, she had a taste of baby food. But every since then, food has never been in her mouth but mostly the suction catheter to suck out her secretion and phlegm. There a period of time, it create a fear in her that anythings went into her mouth mean will hurt her. She will bite the suction catheter everytime we try insert it into her mouth. Nowadays it doesn't happen anymore as she lose much of her jaw strength. But we do notice that she able to rise her chin that really require much strength to do it.

Over the past few weeks, Danielle responded well to the lesson conduct by her special needs teacher. This week, she did finger printing art and she get to choose which color she want to color the windmill and also some balloons. Throughout the session she was engaged, no complaints and made little approving sounds when the teacher showed her the picture as they went along. Hearing the feedback from Danielle's teacher was very uplifting. The only issue we face for Danielle is the timing to conduct the lesson. Though we may fix the appointment with the teacher, Danielle may just at the last moment change her mood or waking up early in the morning and by the time teacher came she just too tired to attend the lesson.

After posting up the video clip, a friend of us commented that Danielle did show her interest. But we just didn't aware of her responds. When we go back to view the video clip again- to our surprise Danielle attempted to pronouncing the word 'E-le-phant' twice and indicated her desire by looking the 'Yes' card a few time. Until she got fed up and switch off as we just didn't got her message. This days we started to introducing the schedule card system to keep Danielle advance notice of the day activties which ready keep her aware of what coming up. All children don't like surprise - same goes to Danielle too. Aleast now her bedtime doesn't stretch as before. All this was taught by her special education teacher.

As my previous post on the YES & NO card to communicate with Danielle. Here the video clip of her while we figuring out what she want to watch. In the end, she loses interest by looking elsewhere.We going back to basic to establish a communication with her before we advance it using the mytobii device.

Though we managed to has a device that able allow Danielle to communicate with us. That device will still require time and practise for Danielle to learn to how to use it. We manage to engage a special education teacher whom familiar with assistive technology to come to our place to teach Danielle. Twice a week she will comeby our place to have a 45 min session with Danielle. Scheduling  the right timing  to start off the lesson sound has a bit of difficulty. Danielle might be sleeping as she tend to wake up early and later goes back to sleep. Trying out the YES & NO card, below is what we should ask her; Watching which show- Danielle, do you want to watch bunnytown show? Yes or No ? #You want to watch Bunnytown ? (nods head, point at YES ) #No- you want to choose again? (shakes head, point to NO) Sound easy, but to the person speak out the question require patience and alertness to look out for her eye contact. We excited ...

Over the weekend, we attend the second time the event - Project Smile which organised by a mommy Rae. This event had been organised for the 5th year. A tea party event for the Children, parent and caregiver to spend an afternoon that aim to GIVE A SMILE for the family. Beside a Yummy lunch, there exquisite face and body painting services. Attach the Danielle's face painting pic. We manage have the same mommy whom did the face painting for Danielle last year event.

Danielle trying out her new Toy This is a season where we are just amazed by what God have blessed us.Within first half of this year, the machine and device that we wanted to get for Danielle appear in-front of us. For this to happen, it really not  our work but with God that brought us to cross path with people whom journey with us, pray with us and cheer with us. This really cause our heart's ( both me and my wife ) to overflowing with Gratitude , Thankfulness, Appreciation and Blessing. Thanking the Lord for thoughtful of you that have in way of another helped us in this journey with Danielle. A bit of information of this Pceye Go or Eye graze device that assisting Danielle- With limit limb movement for Danielle, there limited assistive device that able to help Danielle to learn and communicate. We had a Ipad for Danielle but as her muscle slowly waste away. She loses much strength to control and grip for both her hand. With this device, which uses Infrared red camera to ...