My Princess Danielle

Danielle won a xylophone in the project smile event being the best dress up child (actually all the kid that came for the event were best dress up winner) . Anyway, in daddy view both of them, Beth and Danielle were best dress up. We can't wait for her to try out the new toy and same goes to her in music making.

This afternoon we attended the 'Project Smile' organised by Rae and the hospital and this was the 4th year running. This tea party was specially cater for the hospital homecare patient and their caregiver. Both of my two daughters dress to the occasion of being the princess belle. It was a time fun with ballon sculpture, face painting, performance and family photo shoot. But most of all getting to meet up with other parent with special need child.

There was a bit of delay in the morning for the schedule operation, it was shifted to afternoon 1pm and it was done by 3.30pm. This Danielle's new low profile GJ button replace her worn off high profile GJ button. As for trach area, the ENT doctor didn't find any unusual tissue growth inside her airway. Oh, Danielle lost one of her front teeth in this procedure, explain by the surgeon that her mouth wasn't able to open wide enough. Now she has no more front teeth- two front teeth lost on the last episode and this time one more. Anyway, she not using her teeth to chew food that how I came to the term.     

Danielle is preparing for a coming tea party organise by the hospital- Project Simile.Before this happen, Danielle will have to admit on coming wednesday to hospital to replace her worn off jg button and check the trach area. The replacement of the button has to be carry under GA and this shedule on thursday. Till then praying that everything will go well for this coming procedure.

Eversince Danielle did her trach last year Oct, managing her secretions is much easier. This mean lesser suction through her nose and mouth and it mean less trauma on her. As I recalled back the first look of her new look after her trach operation. Suddenly i recalled back the promises God revealed to me two years back- I'll give her a new face and new voice. That time I still wondering how she be able to less dependance to the mask. Last year due to the reflux issue that resurfaced again, she was hospitalised and intubating her was a tricky thing due to her narrow airway whom later ended up having to lose two of her front tooth. We managed to got her life back and just lost two tooth. So having her trach was the next thing. But then the ENT doctor stress that Danielle might not voicalise due to the trach limiting the air passing through the vocal cord. We prayer that this will not happen and when she awaked from the GA. Sound actually came off from her mouth and now that she mu...

This is Danielle second time drip herself into the water tub experience the weightless feeling. The last time we did this was when she was 6month old together with her elder sister. That time she was not so soft yet, that didn't require her to carry the diving gear into the tub. Seeing her floated up experience the weightlessness, really gave us great joy that all the effort are worth it. The best thing abt this tub is it is affordable ($190+$20 delivery), portable (with our tiny bathroom, we can make it stand to save space when not in use. http://www.portable-bathtub.com Thanks God for this tub :)

Due to her soft nature we have not been able to position her as the picture shown. Most of the time she is in the laying down position even though she has a serious reflux issue. Evensince, last year October after she did her trach. She has more reserve and getting stronger day by day. Thank You GOD for the healing and strengthen. Not forgetting all the Uncles and Aunties for praying for me.