My Princess Danielle

Recently I came across this blog that the Mom- Maria Lin shares about her struggles of raising up a special kid. She shares about 7 things that you don't know about special need parent. 1) I am tired 2) I am human 3) I am jealous 4) I am scared 5) I feel alone 6) I want to talk about my son / its so hard to share about his son 7) I wish you would stop saying 'retarded', 'short bus', 'as long its healthy...' Through her sharing it made me feel that I am not alone as I can identify with those 7 things listed. click on this link to read more about her sharing.

Our orchid plant in the our little garden recently bloom with many beautiful orchid petal. It's a rare sight in our city area. It's our second rainbow sighting since we moved into our new place. The sighting of rainbow give us the assurance of the God promises of His blessing and provision

Lately we decided to install the cable tv in Danielle's room to allow more choices tv programme instead of the DVD disc we have been playing to her. This also created opportunity for my elder daughter to join in to watch the TV programme together. Little did we know that this created a bonding time for both of them. There was time where both of them not able to agree to watch the same TV programme. Danielle will protest by making loud sound and Beth will said- ' Meimei ( sister), you must shared. ' Both wants exclusive. Neither party will want to give in, but Beth being the big sister will eventually give in. Its a normal to has friendly fights between sibling. Watching the scene unfold infront of us, me and my wife felt heart warming. Having a sick child in the family, the child become the centre of focus and other sibling might easily be neglected. We recognise this and we get Beth to involve in caring for her sister. Giving her simple task like picking up things for Da...

While filming this video, she actually stopped moving her leg and contiune once I stop filming her or move the camera away. Her tolerating of being incline more than 10 degree had improved. Hoping in due time, she will be able to situp.

Through a friend who started the 'Rare Disorders Society (Singapore)' , we brought along danielle to support the first Rare Disease Day in Singapore. Held yesterday at the 'Raindrop@cafe' at the Scape.

Her hand coordination is getting better and it just matter of time she prefect the skill of clapping hand.

There are time where we rush to Danielle's room to the sound of alarm from the oximeter, later to find out that it a false alarm. From Danielle facial expression - we can tell that she seeking attention. Wondering if she figure out that the alarm from the oximeter really get everyone attention.