My Princess Danielle

It been coming to a month after Danielle discharge from the hospital. Within 3 week, she actually put on addition of 1kg weight. Which made us quite concern as her weight gain just too fast. Beside this I constructed a new Gym for Danielle to work on her exerising.

Just to share this wonderful song.I last remember this song was from the movie title: Cool Running. Few weeks back, my elder daughter Beth was practising it for her school performance. The lyrics somehow ministered to both me and my wife that God is saying to us, that the storm going to be over soon and the road ahead will be much easier. Enjoy the song and May it too minister to you. That in whatever circumstance you are going through right now, the storm will eventually be over and it will follow by much clearer sky and sunny day.

Last wednesday evening 9 nov 11, after a success insertion to replace the bursted GJ tube. Danielle was given the green light to discharge from hospital and to manage at home. Today is Day 6 and she is recovering with lesser and clearer secreation to remove from her nose, mouth and trachy. Though Danielle is back home, both me and my helper were down with sickness. It will take another few month before Danielle can be fully recover and settle down with herself being without using the mask but the trach. All in all she had stay for almost 3 month in the hospital. Glad she back home and looking forward spenting together celebrating the first Christmas in our new place.

On last thursday afternoon, Danielle finally was well to be discharge from the hospital. After a night stay at home, we had to rush her to back to the hospital due to her GJ tubing burst. As it happened on friday and there a holiday coming up on Monday,there no doctor to carry out the procedure to replace the GJ tube under endoscopy. The doctor carry out the last insertion was out of town. We had to wait until tomorrow to carry out the insertion of the GJ tube. Until then Danielle, is on IV drip since friday night and a very slow feeding rate through the peg button. Yesterday, danielle secreation started to get thicken again and her trachy was again block. We are praying that Danielle protected against cross infection within the ward. Looking forward tomorrow for the procedure.

The Doctor increase the frequent of nebuliser treatment from 6hrly to 4hrly to loosen up the secreation that still present inside danielle lung, this really help to loosen up her secreation and Danielle's trach blockage over the weekend was much better managed. As the secreation was much loosen up, the frequent removal of the secreation had to increase too. This mean frequent suctioning session. As a result of it, Danielle was exhausted after each suctioning session. She also have frequent desat espiode as secreation tend to trap at her upper right loop lung. Her discharge plan have to postphone till end of this week until she more stablise and more managerable.

As much as we want her to be at home, she just still not ready to be discharge from the hospital yet. Her trachy have been constantly block, as result we have to change her trach from every 5 day to everyday. We also looking at changing it twice everyday since last evening we had another trachy blockage espiode. Trachy blockage is a danger issue as it block the only breathing passage to Danielle. She can be looking fine one moment and the next moment she can be very distress with breathing difficulty.

During her stay in the hospital, Danielle was given award for her Bravery n being a super kid in the ICU. Danielle had a few of them during her last previous admission.