Posts

Finger Tasting

Recently, Danielle has been exploring her finger. This require her strength to lift up her hand and place her finger into her mouth. For her to carry out this task it require lot of coordination. Glad to see her reaches another milestone.

Daddy's girl

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Beth with her new spectacle, Danielle and me.

What I have learned about GRIEF

There were nights that I sudden awake and a sense a great fear for Danielle safety. There were also nights that i awake thought I'm at the hospital. But after hearing her breathing sound through the monitor, I felt a sense of relief that she in good hand and go back to sleep. How silly I am. Everyday when I look at this little fighter , I Thanks GOD for walking together with us through this journey. I came across a blog that share on this topic of grief and it was written by an SMA mother, Monica English, who lost her daughter to SMA. What I Have Learned About Grief What I have learned about grief is that I knew nothing of grief before I was thrust into it. What I have learned about grief is that experiencing the loss of a child through other parents gave me no real insight into what I feel now. What I have learned of grief is that it is inconsistent - some moments/hours/days I am fine - really! But some moments/hours/days I feel as if someone is sitting in the middle of my chest m...

Computer game II

Previously Danielle not able to tolerate the upright position. Now she able to and play the computer game.

Gaming time

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With a special switches and adaptive computer mouse, Danielle able to play computer game.

Bonding Time

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Danielle enjoyed watching her sister Beth play and also accompany her.

Trip to the Bird Park

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Group photos with the back drop of the flamingos Danielle's view Our two precious girls