Posts

Beach outing

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It is a beautiful day and it will be good to bring Danielle out to enjoy the sun and sea breeze.

Inspirational Dad

Just to want to share this team of father and son competing in marathon and ironman. The Rick and Dick hoyt team - After seeing their video, it really inspire me that with Love there nothing that you cannot do. You know ,when Danielle was diagnose with SMA and she will have difficult taking care of herself. I actually have the thought of pushing Danielle, to finish a marathon or any race event. Just to show her that even with her disability she still able to carry on living as a normal person. But that has to wait till she is strong enough and also I'm fit enough to finish the distance. May this sharing be a inspiring to you that with LOVE, there nothing that you cannot achieve.

Incline Position

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Previously, danielle unable to tolerate even a slight incline position. Now she able and we're looking forward to the day where she able to tolerate at a sit up position. Until then, we're going slow with it.

Danielle New Position

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Will the changes to Bipap machine for Danielle. We notice her getting stronger each day. So we able to try new position to strengthen her limbs. As Danielle spend most of the time lying down, this position give her back a break. Which is mean quite comfortable for her. But we are going slow as each session last only 15 mins.

Having fun with the phone...

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Hello, anyone there?

Baby Danielle

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I was going through photos of Danielle that I come across this. Photos was taken few hours after she was born, She born on the 22 Jan 2008, weighting 2.9kg.

Update on hospitalisation

Just to update on Danielle hospitalisation. Thanks for your prayer and concern. Yesterday, late afternoon Danielle was discharge from the hospital. Now resting at home, with the Bipap machine and a new button. Through out this episode, we see God hand in every area. From the day, we decide to switch Danielle from Cpap to Bipap machine. As we know this switch will benefit Danielle, God started to arrangement all the resources to pour in. Starting from the idea brought up by Nate at SMAspace of using Bipap. Getting our respiratory doctor for approval, carry out the sleep test, changing the G botton as the previous one is leaking, hospitalisation, free from H1N1 flu, adapting to Bipap setting for Danielle and back home. It may sound as a whole journey very dramatic. But as we allow God handle the situation, it is just that smooth sailing. THANKS FOR JOURNEY WITH US.