My Princess Danielle

During her recent back to hospital, we manage to got the PT to custom made a foot splint for Danielle's feet. This help Danielle maintains the correct alignment of the bones in the foot and ankle. Due to Danielle's low muscle tone, her feet tend to develop " foot drop" - tightening of the foot/ankle muscles- no longer allowing free movement. It helps to slow the progression and allow proper alignment of her feet. With these, she is maintaining neutral position.

Just like to say few word to all the Uncles, Aunties, Jie Jie and Ke Ke. Thanks for your concern, with the love and care from my mommy and daddy , I'm growing stronger and stronger each day.

Praise the Lord that Danielle is back home and that she need not have to stay for too long in the hospital. In fact, this was the shortest stay she ever have (3 day) . Not that I wish she stay longer but glad that she have a speedy recover. This time round of admission, nurses that ever taken care of Danielle. All said that she have grow taller and put on weight. Glad to hear that as this show our effort to keep Danielle strong and healthy have pay off.

Just few day before the home care review, Danielle have another round of lung collapse and had to be hospitalise. After X-ray was done, the collapse was at the right lower portion of the lung. Good thing that we brought her in early, as we experience the last few round , any blockage to the lung have to be treated before something turn out worst. Prior to the hospitalisation, there a tell-tale sign the Danielle was not feeling well, heart rate goes above normal and body temperature was high. This morning will wait for the doctor assessment whether Danielle is fit to goes home. For those have been regular customer to the hospital will realise there a shortage of bed especially the high dependence ward. Doctor can't wait to send the patient home. Standing at their side, they creating more bed for others who might be needing it more than we do. Anyway, we don't want her to stay there too long if she is already feeling better and can be resting at home.

The present CPAP machine Danielle is using had a serious issue that we really need to address to it. I manage to come out a solution and address to the issue without much cost and simple to install. If you are a CPAP or BiPAP user, it may be great help as I elaborate more. Presently, we are using Isleep 10 CPAP machine that does not come with a inner backup battery. In event there a power failure or the air supply cut off, the machine will not alert the surrounding people about it. Until the child complaint or the oximeter pick up that the O2 level drop below 95%. This mean a lapse of 15 to 20 minute depend the child tolerant level. It happen to Danielle that when we brought her out and along the way the CPAP machine just cut off by itself- the power adapter came losses or accidentally we press the on/off button. Somehow those things that never come across our mind happened. There one night while we are sleeping and there a power trip for no reason. Good thing that i install the alert ...

It been coming to 3 month since Danielle last homecare review, the next review is just around the corner. We really looking forward to it as we eager to hear what the doctor will say after assessing her. What changing will there be, for example- reduce CPAP pressure setting, stop the continues feeding, begin oral feeding... the lists goes on. But deep down we're happy to see Danielle another day away from going back to hospital. Our fear will be that Danielle may not make it on the another round of hospital stay. If God will to take her home, we just have to accept and release her. There was a close friend asked me a question which really caught me off guard. "How long will you want to keep Danielle at your side?" My answer to her was, " as long as we can. " But both of us know ,we do not have an answer. Danielle have been growing stronger and stronger each day. She have grow in size too. There many things in our lists that we want to see that fulfill in Danie...

It has been 11 weeks since Danielle was out of the hospital stay. We have been busy with stuffs like improving her condition and quality of life, finding a good caregiver, carrying out the daily respiratory procedures, giving her the daily hygiene care, going for therapies, giving her therapies, finding the right diet... While things settle down a bit and many of these stuffs stabilised, I began to find time for rest. In between the 11 weeks, we did have some timeout here and there, like small outing and even a few days away from home. I can say I have sufficient physical rest, but not soul rest. Today I got some and would like to share with you. Extracted out from www.fcbc.org.sg/daily_devotion.asp Prayer, Praise & Promises Daily Devotional Warren Wiersbe walks us through the Psalms - updated daily (SGT 5:30PM) Title: Out From the Depths Author: Warren Wiersbe Read Psalm 42-43 The next time you feel like quitting, read these chapters. The psalmist presents contrasts that depict t...